Register for a focus group!

The Nova Scotia Health Cancer Care Program (NSH CCP) is working to learn more about Nova Scotians living with cancers that are long-term, incurable, chronic, or advanced. These cancers are incurable but treatable. This may include patients who:

have completed initial treatment and continue to receive active treatment (e.g., targeted or hormone therapy).
no longer receive treatment but are closely monitored with follow-up.
have a cancer that is considered incurable that may not need treatment until the time comes (e.g., chronic lymphocytic leukemia).

People living with long-term, incurable, chronic, or advanced cancer face unique challenges. Some of these challenges are because their cancer cannot be cured. Other challenges are because of the long period of time that they live with cancer. The NSH CCP wants to talk to people living with these kinds of cancers so we can understand the challenges and then make changes to the cancer care system to support their needs.

We are looking for people to share their experiences at a focus group. Participants need to:

Have experience with the Nova Scotia cancer care system.
Have been diagnosed with long-term, incurable, chronic, or advanced cancer OR have a family member/friend living with long-term, incurable, chronic, or advanced cancer.
Be over the age of 18.
Currently live in Nova Scotia.

Participation in this project is voluntary. If you cannot attend a focus group session you will be offered the option to participate in a one-on-one interview. The focus group/interview will be about one and a half (1.5) hours long. It may be in person or using video-conferencing technology (Zoom). You will be paid for your time. Every effort will be made to protect your privacy. If the results of the project are presented to the public, nobody will be able to tell that you participated in the project.

During the focus group/interview you will be asked questions about:

Your experience with cancer care.
Your thoughts on how cancer care could be improved.
Your thoughts on what you think could be added to better support you.

The project coordinator will work with you to arrange a date and time for the focus group or interview. All focus groups/interviews will be audio-recorded. Before you attend the focus group/interview, the focus group/interview facilitator will discuss the project with you, respond to any questions or concerns you may have, and confirm that you still want to participate.

If you think you would like to take part, add your name to our list by clicking the 'Sign up HERE' tab below.

What is your name? (First name, Last name)

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What town, community or city do you live in?

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What is your e-mail address?

What is your phone number?

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We will be holding sessions with different groups in the province. Which group do you identify with? (you can choose multiple)

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General focus group for any patients or their caregivers with a prolonged or incurable cancer.

Focus Group for Mi'kmaw patients or their caregivers with a prolonged or incurable cancer.

Focus Group for recent immigrant patients or their caregivers with a prolonged or incurable cancer.

Focus Group for 2SLGBTQIA+ patients or their caregivers with a prolonged or incurable cancer.

Focus group for African Nova Scotian patients or their caregivers with a prolonged or incurable cancer.

What format of focus group would you prefer?

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Select option